EDAW 2020 CARER SUPPORT KEITH GRIMWADE CHAIR NHS

EDAW 2020: CARER SUPPORT KEITH GRIMWADE – CHAIR, NHS EAST OF ENGLAND EATING DISORDERS NETWORK; CARER GOVERNOR AND LEAD GOVERNOR, CAMBRIDGESHIRE AND PETERBOROUGH FOUNDATION TRUST

Overview My experience as a parent carer Carers’ Some Needs thoughts for the future

My experience as a parent carer In the beginning Learning a new word - ‘egosyntonic’ We thought we’d entered a 5 k, nobody told us it was an ultramarathon (and we wouldn’t have believed them anyway) Eating disorders can, and do, destroy people and families Recovery is not only possible but is the most likely outcome…. . it probably won’t look like you imagined it

https: //vimeo. com/170910866

Carers’ Needs In my experience, carers want three things: i. The best possible care for their loved one ii. To know how best to support their loved one’s recovery iii. Their own needs to be met

Some thoughts for the future Outcomes for people with eating disorders and their families would be better if…. . i. Carer needs are part of their loved one’s initial assessment ii. Carers are taught the skills to help their loved one’s recovery from the beginning iii. Support for carers is regular and ongoing – no carer should live more than an hour by public transport from a monthly support group that involves an appropriately qualified professional; helplines should be 5 to 9, not 9 to 5; online support should be ‘as well as’, not ‘instead of’

Three key resources Skills-based Learning for Caring for a Loved One with an Eating Disorder by Janet Treasure, Grainne Smith and Anna Crane Carer’s Perspective: https: //player. vimeo. com/external/269177912. hd. mp 4? s=8 b 7 a 5 b 34 d 51877 cf 1 d 4309184955 b 976 a 41 f 3&profile_id=175&download=1 A Professional’s Perspective: https: //player. vimeo. com/external/269159983. hd. mp 4? s=3 ea 549895 b 12 e 5 b 21 d 31 97 abd 8994163649 e 3 f 56&profile_id=175&download=1

Carers are part of the solution, not part of the problem.