EBMT UK NAP 39 th Meeting Cheltenham 2010

EBMT (UK) NAP 39 th Meeting Cheltenham 2010

Louise Mc. Namara, London (Chair) Tuula Rintala, London (Vice-Chair) Lisa Hammond, Southampton (Secretary) Aileen Nield, Sheffield (Treasurer) Michelle Kenyon, London (Patient and Family Forum) Joanne Harris, Cambridge (Patient and Family Forum) John Murray, Manchester (Main EBMT link)

Main EBMT membership (www. ebmt. org) Centre Membership 1 nurse included in membership fee Extra nurses 40 Euro Individual Membership New: 40 Euro by bank transfer Renewal: 35 Euro by bank transfer

www. ebmt. co. uk 2010 success 209 registered members 11 groups Meeting report from York available to download Average of 2500 unique visitors per month and a record 4500 visitors in September

Feedback from website market research Good response to questionnaire – thank you 65% of respondents have been registered on site for less than 6 months 78% found it easy or very easy to register Most use latest news and meetings pages most regularly 35% found forum useful but 65% never used it 100% would recommend website to a colleague

Future for the website More information Encouragement to use forum and groups Optimisation to run faster New functionality within groups Potential new patient information section

Feedback from meetings market research Good response to questionnaire – thank you 75% had attended a meeting 100% found it useful or very useful Networking, education, information, best practice were strengths of the meeting Current format seems to suit 70% not recommended PFF ( most not aware of it)

Suggestions for future topics Lymphoma JACIE pt transplantation Palliative Care Survivorship ECP Nutritional issues Ambulatory Care The changing NHS JACIE Cord transplants Fertility issues Research and trials Specialist BMT Commissioning

Future Meetings Main EBMT Paris, France, 3 – 6 April 2011 Abstract deadline: 24 November 2010 London Manchester June 2011 November 2011