Demonstrating the Way Forward in Dementia Care Tim

Demonstrating the Way Forward in Dementia Care Tim Mc. Lachlan Alzheimer’s Society Operations Director – Greater London _________________________________________________ www. alzheimers. org. uk Timothy. Mc. Lachlan@alzheimers. org. uk

Dementia: the facts (true or false) Please put your hands up if you think it’s true 1 Memory loss is the first symptom of dementia True 2 500, 000 people in the UK have dementia False – there are over 850, 000 3 Every year dementia costs the UK £ 26. 3 billion True 4 Eating sardines can cure dementia False 5 One person develops dementia in the UK every 4 minutes False – it’s one every 3 minutes _________________________________________________ www. alzheimers. org. uk Timothy. Mc. Lachlan@alzheimers. org. uk

When Grandad got dementia… _________________________________________________ www. alzheimers. org. uk Timothy. Mc. Lachlan@alzheimers. org. uk

Dementia: one more question (true or false) Please put your hands up if you think it’s true 6 You can ‘catch’ Alzheimer’s Disease from dental procedures False _________________________________________________ www. alzheimers. org. uk Timothy. Mc. Lachlan@alzheimers. org. uk

About Alzheimer’s Society • Local Support • Alzheimer’s Society delivers over 3, 000 services across England, Wales and Northern Ireland – Day care and home care for people with dementia – Support and befriending services to help partners and families – From Dementia Cafés, Singing for the Brain sessions to memory-book projects and group outings • Telephone and online services – National Dementia Helpline: 0300 222 1122. – From understanding diagnosis and assessment to dealing with financial challenges – Over a hundred factsheets and other publications _________________________________________________ www. alzheimers. org. uk Timothy. Mc. Lachlan@alzheimers. org. uk

About Alzheimer’s Society • Training and Development services – We provide training for health and care professionals and publish a wide range of training materials and books. • Research – We will be investing £ 100 million in research over the next ten years. • Campaigning and Raising Awareness – The Society demands a better future for everyone affected by all forms of dementia. – We campaign for the rights of people with dementia and those who care for them. – Including the Dementia Friends Campaign – over 1. 3 million – aiming for 3 million more by 2020 www. dementiafriends. org. uk _________________________________________________ www. alzheimers. org. uk Timothy. Mc. Lachlan@alzheimers. org. uk

Mission • Demonstrate best practice in dementia care and support • Provide the best advice and support to anyone dealing with dementia • Change the face of dementia research • Influence the state and society to enable those affected by dementia to live as they wish to live. _____________________________________________________________________________________________ alzheimers. org. uk www. alzheimers. org. uk Timothy. Mc. Lachlan@alzheimers. org. uk

Services Statistics • • 3, 000+ Local Services across England, Wales and NI 18, 500 Service Users supported per month 27, 500 National Dementia Helpline Enquiries per year 31, 000 members of Talking Point Forum online • 850, 000 people with Dementia in UK – rising to over 1, 000 by 2020 _________________________________________________ www. alzheimers. org. uk Timothy. Mc. Lachlan@alzheimers. org. uk

What do people with dementia want? • • Personal choice, control and influence Service designed around need Support that helps people lead their lives Knowledge and know-how Enabled and supported Sense of belonging Hope for the future _________________________________________________ www. alzheimers. org. uk Timothy. Mc. Lachlan@alzheimers. org. uk

Local Society services • • • Dementia Advisers Dementia Support Workers – 1: 1 Singing for the Brain groups Dementia Cafes Carers Information Programmes Peer support groups Day care Home care Advocacy _________________________________________________ www. alzheimers. org. uk Timothy. Mc. Lachlan@alzheimers. org. uk

‘Universal’ Services • National Dementia Helpline • Taking Point online forum • Publications, printed and online • Dementia Connect (launched June 2015) _________________________________________________ www. alzheimers. org. uk Timothy. Mc. Lachlan@alzheimers. org. uk

What is Dementia Connect? • Unique free database • On www. alzheimers. org. uk • Dementia Connect is a services database of local and national services, operated by Alzheimer’s Society and other organisations • Services listed are either dementia friendly or relevant for those living with dementia • By proximity to a Postcode _________________________________________________ www. alzheimers. org. uk Timothy. Mc. Lachlan@alzheimers. org. uk

Purpose of Dementia Connect • Dementia Connect has been designed to aid you to help people with dementia and their carers navigate and access appropriate services • This is achieved through: – Providing one place of information on local services. – Printing or emailing accessible hand -outs that you can share with people with dementia and their carers. _________________________________________________ www. alzheimers. org. uk Timothy. Mc. Lachlan@alzheimers. org. uk

What Information is Included? • Information in Dementia Connect includes a wide range of social, support, groups and leisure activities, drawn from voluntary, statutory, public, partnership and commercial sources. • Examples include: – – – Advocacy Memory Cafes Day Centres Befriending schemes Peer Support Groups Singing for the Brain Walking groups Art groups History groups Social services Community transport services _________________________________________________ www. alzheimers. org. uk Timothy. Mc. Lachlan@alzheimers. org. uk

Which organisations are involved already? _________________________________________________ www. alzheimers. org. uk Timothy. Mc. Lachlan@alzheimers. org. uk

www. alzheimers. org. uk _________________________________________________ www. alzheimers. org. uk Timothy. Mc. Lachlan@alzheimers. org. uk

Select Services, Radius, Number page _____________________________________________________________________________________________ alzheimers. org. uk www. alzheimers. org. uk Timothy. Mc. Lachlan@alzheimers. org. uk

Example 1 _________________________________________________ www. alzheimers. org. uk Timothy. Mc. Lachlan@alzheimers. org. uk

Example 2 _________________________________________________ www. alzheimers. org. uk Timothy. Mc. Lachlan@alzheimers. org. uk

This year, we have done more for people affected by dementia than any other organisation in the history of the world, with global awareness raising and influencing, service reach, research and more. Jeremy Hughes, Chief Executive 18 th December 2014 _________________________________________________ www. alzheimers. org. uk Timothy. Mc. Lachlan@alzheimers. org. uk

Please Remember: What people with dementia want is: • • Personal choice, control and influence Service designed around need Support that helps people lead their lives Knowledge and know-how Enabled and supported Sense of belonging Hope for the future _________________________________________________ www. alzheimers. org. uk Timothy. Mc. Lachlan@alzheimers. org. uk

How you can help us to beat dementia? • Difficulty researchers face is recruiting participants • While many people are looking for studies to contribute to and take part in, but where are they? • National Institute for Health Research (NIHR) in partnership with Alzheimer Scotland, Alzheimer's Research UK and Alzheimer's Society have developed 'Join dementia research', a new service which allows people to register their interest in participating in dementia research and be matched to suitable studies. _________________________________________________ www. alzheimers. org. uk Timothy. Mc. Lachlan@alzheimers. org. uk

In the UK, one person develops dementia every 3 minutes _________________________________________________ www. alzheimers. org. uk Timothy. Mc. Lachlan@alzheimers. org. uk

Your Next Steps _________________________________________________ www. alzheimers. org. uk Timothy. Mc. Lachlan@alzheimers. org. uk

Thank you Tim Mc. Lachlan Operations Director – Greater London Timothy. Mc. Lachlan@alzheimers. org. uk 020 7264 5989 _________________________________________________ www. alzheimers. org. uk Timothy. Mc. Lachlan@alzheimers. org. uk