Dealing with a common NHS itch Developing an

§ See: a clear need § Believe: you can be the solution § Wait:

How big is the problem? § Amnesty/ Audit – 26% ‘in-date’ § Listening into

Listening into Action feedback Patients § Want to be able to contact someone for

Evidence-based ‘Information for Patients’ that is: easy to produce, easy to understand easy to

Easy to Produce § New policy and templates § Streamlined approval process § Staff

Easy to Understand § Health Literacy § § For 43 % of adults in

Easy to Find § Public-facing online store of leaflets ‘Your. Health’ § Properly catalogued,

Where are we now? § Listening into Action completed § Developing a network of

Where are we going? § Comprehensive single store of up-to-date leaflets, accessible for all

Was it worth it? § Yes § Political wins § Demonstration of our skills

Summary Desire to develop services See a need Make a vision Align with main

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Dealing with a common NHS itch: Developing an Information for Patients service from scratch Stuart Glover, Library Services Manager Hannah Beckitt , Patient Information Librarian University Hospitals of Leicester NHS Trust

§ See: a clear need § Believe: you can be the solution § Wait: for someone to help you

§ See: a clear need § Believe: you can be the solution § Wait: for someone to help you § Create: your own opportunity § Work: hard

How big is the problem? § Amnesty/ Audit – 26% ‘in-date’ § Listening into Action

Listening into Action feedback Patients § Want to be able to contact someone for more information § Feel we don’t communicate well with them § We use too much medical terminology § Out of date leaflets Staff § Lack time & support § Feel it is not a Trust priority § No central IT system for managing/ storing/ updating

Evidence-based ‘Information for Patients’ that is: easy to produce, easy to understand easy to find

Easy to Produce § New policy and templates § Streamlined approval process § Staff training

Easy to Understand § Health Literacy § § For 43 % of adults in England health information is too complex (Rowlands, 2015) The cost of low health literacy is estimated to be 3 -5% of the total NHS budget (Eichler, Wieser & Brügger (2009) § Patient feedback and involvement § Contact details on all leaflets

Easy to Find § Public-facing online store of leaflets ‘Your. Health’ § Properly catalogued, actively managed & archived § Staff time - to ensure content is available to populate the leaflet library

Where are we now? § Listening into Action completed § Developing a network of Patient Information leads § Governance within each service § Your. Health - new online store of leaflets due to launch this month

Where are we going? § Comprehensive single store of up-to-date leaflets, accessible for all § Literature searching for patients § Signposting patients to high quality information – clinician referrals § Working with other organisations (Reading Well Books on Prescription) § Health Information Week #HIW 2018

Was it worth it? § Yes § Political wins § Demonstration of our skills § Proof that we care about such issues § Show we are willing to invest in ourselves § Build on this in the future

Questions

Summary Desire to develop services See a need Make a vision Align with main drivers Take a gamble