Communities Care Family Caregivers Respite Pilot Program Learning

Communities Care Family Caregivers Respite Pilot Program Learning Community Kick-Off SESSION #1 – OCTOBER 8, 2020 LISA PAYNE SIMON

About Communities Care & the Learning Community Communities Care WNY - program components: • Training in Creative Problem Solving & Project Management for rural community-based organizations (5 workshops) • Grants to support rural community-based respite pilot projects & partnerships. Pilots are informed by family caregivers. • Learning Community facilitates idea generation, relationship building, sharing lessons learned and best practice among respite pilot teams. Welcome to Learning Community Session #1!!! Communities Care is funded by the Ralph C. Wilson Jr. Foundation and Health Foundation for Western and Central New York, directed by The Philanthropic Initiative (TPI) in partnership with Teresa Lawrence, Ph. D (International Deliverables) The Philanthropic Initiative / www. tpi. org 2

Communities Care: Re-imaging Respite for Family Caregivers of Older Adults ARCH National Respite Network & Resource Center defines respite: Respite is planned or emergency services that provide a caregiver time away from caregiver responsibilities, and which result in some measurable improvement in the well-being of the caregiver, care receiver, or family. … building on this definition… Communities Care is re-imagining respite – how? • • Rural CBOs and health networks forming new partnerships • Asking family caregivers what respite means to them • Applying creative problem-solving to local respite solutions Tailoring solutions to community strengths in unprecedented times The Philanthropic Initiative / www. tpi. org 3

Communities Care: Re-imaging Respite for Family Caregivers of Older Adults Welcome Communities Care Respite Pilot Grantee Partners!! • Ardent Solutions, Inc. , Genesee Valley Central School District, and Allegany County Office for the Aging will create the Intergenerational Enrichment and Educational Respite Program • Healthy Community Alliance, Total Senior Care PACE, Home. Care & Hospice, Cattaraugus County Department of Aging, Directions in Independent Living, Interfaith Caregivers, Inc, and Wyoming Office for the Aging will create WNY E-Respite: Finding Relief through Technology • West Falls Center for the Arts, The Magellan Group, Alzheimer’s Association of WNY, and creative partners (local musicians) will promote Memory Café Replication, Sustainability & Expansion for Caregivers, Older Adults with Dementia, and Older Adults Living Alone in Rural Communities The Philanthropic Initiative / www. tpi. org 4

Learning Community Session #1 AGENDA Our Work Together Learning Community Overview • Program timeline – Year 1 • ARCH Respite Certification Guidelines • Connecting to research & best practice - ARCH Committee for Advancement of Respite Research (Ken Genewick, HFWCNY) • Website premiere! Teamwork! – A pilot team exploration activity (Four. Sight Mindset Reveal) facilitated by Teresa Lawrence Individual Teams Report Out on Pilots Evaluation Planning & Next Steps by Linda Weiss, NY Academy of Medicine

ARCH Innovative and Exemplary Respite Service Guidelines ARCH recognizes (certifies) respite programs and services nationwide based on these 6 characteristics – demonstrated over 3 years: 1. Demonstration of positive outcomes - respite services shown to have benefits to family caregivers (evaluation with NYAM) 2. A written plan with observable, measurable goals and objectives (your pilot work plan) 3. A program or service manual or guide (policies & procedures for staff, volunteers) 4. Person- and family-centered services (family caregivers inform pilot services & have purposeful roles in a program advisory capacity) 5. A professional development plan (staff and volunteer training guidelines – part of your program manual) 6. A plan for collecting and evaluating data – evaluation includes measuring caregiver satisfaction, respite service implementation, and at least one caregiver-focused outcome (evaluation with NYAM) The Philanthropic Initiative / www. tpi. org 6

Openness Creativity Caregiver & Community-Centric Collaborative & Inclusive Re-Imagining Respite The Philanthropic Initiative / www. tpi. org

Thank you! The Philanthropic Initiative 75 Arlington Street, Boston, MA 617. 338. 5886 | www. tpi. org