AUTISM AND SEXUALITY Observations on Succeeding in the

AUTISM AND SEXUALITY Observations on Succeeding in the Challenges of Intimate Relationships for People on the Autism Spectrum Autism One Conference 27 -30 May 2008 Chicago, IL Presented by Stephen M. Shore, Ed. D. www. Autism. Asperger. net Christina Adams www. Christina. Adams. Writer. com 1

AUTISM & SEXUALITY Introduction – Stephen Shore The Autism Bomb Loss of speech & tantrums Self-stims Environmental withdrawal 2

THE AUTISM SPECTRUM Severe Moderate Light Increasing Variability of Presentation Kanner’s PDD-NOS HFA/AS Rosenn, D. (1997). “Rosenn wedge”. From Aspergers: What we have learned in the ‘ 90 s conference in Westboro, MA. Used with permission T w i c e E x c e p t i o n a l i t y 3

AUTISM & SEXUALITY Introduction – Stephen Shore AGE E V E N T S 0 1. 5 2. 5 4 6 8 10 13 19 Typical development Turn over at 8 days Rapid physical and motor development Autism bomb hits Withdrawal from environment Tantrums Putnam evaluation of atypical developmen t, strong autistic tendencies & psychotic Early intervention from parents who refute recommend ations for removal from home Enter Putnam Condition improves to “neurotic” The wonderful world of watch motors Echolalia and return of speech Eating baby food Kindergarten Social & academic difficulties Discovered making a mess of myself while eating BBQ chicken wings Loved cats but dogs… Yikes bikes! Cracking rocks Special interests in astronomy and weather Teacher concerns for reading and math difficulties Concern about dropping the letter “e. ” My friend says “he feels like a pizza” and I argue with him that he does not look like a pizza and probably does not feel like one either Middle and high school Finally getting it together but still often in left field Discovering the band room Time to focus more on people and not their bicycles College More friends Dating Others really do think differen tly Utopia! Completed a doctoral dissertation on comparative approaches for working with children on the autism spectrum 4

AUTISM & SEXUALITY Introduction – Christina Adams 5

AUTISM & SEXUALITY Talking About Sex - Myths of Sexuality - Peter Gerhardt Common Myths • Persons with autism… - have little to no interest in sex - are hypersexual - are solely heterosexual So… How can we help people on the autism spectrum deal with this important part of life? But the Truth is… • Persons with autism are as diverse sexually as everyone else - and, sexuality education is complicated by challenges in language, communication, and social differences. While sexual feelings and interest may be high, a primary information source is usually not available – non-spectrum teens (Volkmar & Wiesner, 2003). - With proper support people with autism can have relationships; often with a person having a difference. 6

AUTISM & SEXUALITY Talking About Sex - The Tapestry of Sexuality is a part of life and is as developmentally appropriate for people with autism as anyone else. Heterosexuality Homosexuality Bisexuality Asexuality Everyone has a piece of each. It’s just a matter of degree. 7

AUTISM & SEXUALITY Talking About Sex - Topics to Cover - Peter Gerhardt 1. Public versus private behavior 2. Good touch versus bad touch 3. Proper names for body parts 4. Slang names for body parts 5. Personal boundaries 6. Masturbation 7. Social skills and relationship building 8. Avoiding danger and abuse prevention 9. Dating skills 10. Personal responsibilities and values 8

AUTISM & SEXUALITY Circle of Relationships Stranger Acquaintance Friend Family -->Significant other Passerby, Classmate, Coworker, Fellow Commuter Neighbor Classmate, Coworker Close Neighbor Classmate, Coworker Mom, Dad, Sibling, Other Boy/Girlfriend, Fiancé, Spouse Develop a social narrative 9

AUTISM & SEXUALITY Friendship, Romance, and all that “Other Stuff” - Teresa Bolick, Ph. D. Before you talk about sex you need to talk about closeness 1. Listening is the most important skill for friendship and romance. 2. Good hygiene is probably the second most important skill. 3. Close friends talk with each other about life experiences. 4. Close friends can “agree to disagree. ” 5. The most important part of “boyfriend” or “girlfriend” is “friend. ” 6. Showing interest in another person is a terrific way to flirt. 7. Being “revved up” can get in the way of friendship and romance. 10

AUTISM & SEXUALITY Friendship, Romance, and all that “Other Stuff” - Teresa Bolick, Ph. D. 8. Never touch a friend unless he or she says it’s all right. 9. If you feel uncomfortable about someone’s actions (or your own), tell a trusted adult. 10. LAST BUT NOT LEAST, “Stop” means “Stop” and “No” means “No. ” Those with autism are people too… Perhaps just more so. 11

AUTISM & SEXUALITY Talking About Sex – Jerry Newport When? Look for signs of interest • Suggestive clothing • Stickers • Books and magazines • Questions and comments • Signs of Masturbation Great subject for incidental teaching! Life-long conversation 12

AUTISM & SEXUALITY Talking About Sex – Jerry Newport How? Sex is a normal yet a very private act and is clean. • Discuss in a developmentally appropriate manner Find the balance between not too much and not too little • Make sure you understand the question(s) being asked • Explain in a matter of fact manner 13

AUTISM & SEXUALITY Talking About Sex – Jerry Newport Helpful Hints for Discussion • Use simple visual aides to help explain male and female anatomical functions - People with autism tend to be visual. • Sex is a part of growing up to be discussed at the proper place and time • Responsibility in… - Seeking - Having - Respecting the wishes of potential and actual partners 14

AUTISM & SEXUALITY Talking About Sex – Jerry Newport Helpful Hints for Discussion • Validate feelings of… - Fear - Possible loneliness from being left out socially ° For women especially — using sex as a way of gaining acceptance • Share your own experiences as appropriate… - Successes - Mistakes • You are there to provide nonjudgmental support in times of… - Further questions - Emergencies 15

AUTISM & SEXUALITY Talking About Sex – Masturbation - Peter Gerhardt Redirecting Inappropriate Masturbation 1. Interrupt the behavior as early in the chain as possible 2. Remind the individual as to the parameters of time and place 3. Redirect the person to… A. activities requiring the use of both hands B. activities requiring preferred levels of attention, focus, or physical movement C. the appropriate place for that activity 4. Make the alternate activity intrinsically reinforcing 5. Consider scheduling “alone time” in their room if appropriate 6. Avoid redirection to places other than an individual’s bedroom (e. g. bathroom) 16

Helping Sam Get a Date - Case Study —Relationships— Sam is 16 years old, plays the tuba, and has recently taken notice of a cute flute player in the band. He has shared with you that he would like to get to know her “better. ” Sam has told you a number of time he would like to see “more” of her and you sense that he just can’t quite bring himself to say that he wants an intimate relationship. He’s even talked about the possibility of marrying her. Sam also revealed to you that she declined his offer to take her out for a hamburger. As Sam’s confidant, what are some things that you can suggest to Sam about romantic relationships and how he might be able to get a date? • Please do the following… 1. describe what and how you will tell him about intimate relationships, and, 2. suggest how he might increase his chances of success for a date, and, 3. how to tell if she is not interested and what to do about it. 17

FRIENDSHIP, DATING, & SEXUALITY Talking About Sex – Resources Aston, M. , The other half of Asperger Syndrome. Hénault, I. , Asperger’s Syndrome and sexuality: From adolescence through adulthood. Hendrickx, S. Love, sex and long-term relationships: What people with Asperger Syndrome really want. Lawson, W. , Sex, sexuality and the autism spectrum. Mesibov, G. , The TEACCH approach to autism spectrum disorders. Newport, J. & Newport, M. , Autism-Asperger’s and sexuality: Puberty and beyond. Shore, S. , & Rastelli, L. , Understanding autism for dummies. Sicile-Kira, C. , Autism spectrum disorders: The complete guide to understanding autism, Asperger’s Syndrome, pervasive developmental disorders, and others ASDs. Wrobel, M. , Taking care of myself: A hygiene, puberty, and personal curriculum for young people with autism. 18

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