ANZDATA Session ANZSN 2013 Steve Chadban Stock flow

ANZDATA Session, ANZSN 2013 Steve Chadban Stock, flow and direction Nick Gray ANZDATA Audit Kev Polkinghorne Haemodialysis prescription Melanie Wyld Pregnancy after transplant – kids Stephen Mc. Donald Deceased donor trends Phil Clayton Living donor trends Matt Jose Who and What’s next at the registry

RRT A&NZ – Jan 2011 Transplant 9, 968 Dialysis 13, 063 RRT Jan 2010 23, 031 © ANZDATA Registry

RRT A&NZ – 2011 -12 2, 937 new starts* 117 pre-emptive Tx 4% 2, 820 new dialysis 96% Transplant 9, 968 Dialysis 13, 063 *Similar number do not receive RRT. See Sparke et al, AJKD 2012 © ANZDATA Registry

RRT A&NZ – 2011 -12 2, 937 new starts 117 pre-emptive Tx Transplant 9, 968 + 956 - 248 graft fail 839 Tx from dialysis 2, 820 new dialysis Dialysis 13, 063 + 3, 068 - 839 © ANZDATA Registry

RRT A&NZ – 2011 -12 2, 937 new starts 117 pre-emptive Tx 2, 087 Deaths Transplant 9, 968 + 956 - 248 - 243 839 Tx from dialysis 2, 820 new dialysis 243 death with function 2. 4/100 pt yrs 248 Dialysis 13, 063 + 3, 068 - 839 - 1, 844 death on dialysis 14. 0/100 pt yrs © ANZDATA Registry

RRT A&NZ – 2011 -12 2, 937 new starts 117 pre-emptive Tx 2, 087 Deaths Transplant 10, 433 839 Tx from dialysis 2, 820 new dialysis 243 death with function 2. 4/100 pt yrs 248 Dialysis 13, 448 1, 844 death on dialysis 14. 0/100 pt yrs RRT 2012 23, 881 + 3. 7% © ANZDATA Registry

Figure 1. 4 ANZDATA Registry Annual Report 2012

Figure 1. 5 ANZDATA Registry Annual Report 2012

ANZDATA Registry – Plans, 2013+ Aims: • Annual Report 2013 • Real-time data Earlier, better Phil Clayton Efficiency, accuracy KPI, stock and flow Kylie Hurst Stephen Mc. Donald • Identified data • Collaborations • Research Key dialysis and transplant outcomes – website ANZ, Government, International Maximise output, impact, involvement NHMRC funding application Methods: • Funding • Hardware • New People AOTA, NZ Department of Health, KHA, Amgen New interfaces, new database – 80% there Data team: Kylie Hurst, IT Maneesha Kandamby Epidemiology Fellow: vacancy arising Steering Committee Chair – Matt Jose Executive – Clayton and Past SC Chair Working Groups © ANZDATA Registry

ANZDATA Registry Working Groups Group Manger Members Cancer Angela Webster Germaine Wong*, Rob Carroll, Jonathon Craig, Randall Faull, Adrian Hibberd, Stephen Mc. Donald Haemodialysis Kevan Polkinghorne Mark Marshall, Richard Allen, Rowan Walker, Vincent Lee, Stephen Mc. Donald Indigenous Matthew Jose John Collins, Gillian Gorham, Mark Thomas, Jaqueline Hughes, Lesley Salem, Natasha Rogers, Stephen Mc. Donald Peadiatric Sean Kennedy Lil Johnstone, Phil Clayton, Stephen Mc. Donald Peritoneal Dialysis Neil Booudeville, David Johnson, Kym Bannister, Kate Wiggins, Philip Clayton, Stephen Mc. Donald Transplant Scott Campbell Wai Lim*, Helen Pilmore, Graeme Russ, Steven Chadban, Stephen Mc. Donald © ANZDATA Registry

ANZDATA Registry – thanks! Units – patients, doctors, nurses, allied Data and time Interest and attendance Enquiries - >2000 per annum Feedback Funders: Australian & NZ Governments, KHA, Amgen, pharma ANZSN ANZDATA stand, ANZDATA Session Workers within ANZDATA • Executive, Office, Steering Committee and Working Groups © ANZDATA Registry

ANZDATA Session, ANZSN 2013 Steve Chadban Stock, flow and direction Nick Gray ANZDATA Audit Kev Polkinghorne Haemodialysis prescription Melanie Wyld Pregnancy after transplant – kids Stephen Mc. Donald Deceased donor trends Phil Clayton Living donor trends Matt Jose Who and What’s next at the registry