All Ireland Institute of Hospice and Palliative Care

All Ireland Institute of Hospice and Palliative Care ‘Aims to improve the experience of palliative care’ Brendan O’Hara (Programme Manager) Tweet: @AIIHPC @brendanohara 16

Partners

Funders

Palliative sector’s Institute with key role in brokering relationships

Three Work Programmes 1. Integrate palliative care research, education and practice development in the health and social care systems across the island of Ireland 2. Partner with users, carers and communities to ensure that palliative care provision meets their needs and continues to do so 3. Support the development of specialist palliative care to meet the current and emerging demands of the health system

AIIHPC Team Dr Mary Rabbitte Programme Manager Marie Mc. Keon Knowledge Transfer Project Manager Karen Charnley Head of Institute Dr Jackie Boylan PCRN Project Manager Dr Cathy Payne Programme Manager Mary Kearns Office Manager Brendan O’Hara Programme Manager Gareth Wescott Digital Manager and Developer Bernadette Pirihi Business Support

Policy and Practice • Government Departments and Agencies in both jurisdictions • Regional Palliative Care Programme – Palliative Care in Partnership (NI) • National Clinical Programme for Palliative Care (Ro. I) • Networks – CEO of Hospices Network • National and International links – European Association of Palliative Care Conference, Expert Collaborators • Supporting conferences and workshops (e. g. Palliative Care Outcomes Workshop Sept 2017)

Palliative Care Research Network Established Palliative Care Research Network (PCRN) in 2012 Recently launched PCRN Strategy 2017 – 2022 HRB and PHA R&D Division funding for two project managers Major areas of focus – supporting collaboration, service user and carer involvement, leadership and capacity building, knowledge dissemination and funding for research • Events – Annual Symposium, Early Career Researcher Forum, Knowledge Transfer Workshop • •

Education • Supporting development of online education – E-Learning – Videos – PHA Conferences – Video Scribes – Palliative Rehab • Education Network • Project ECHO AIIHPC Nursing Homes • Policy – post grad education

Palliative Hub https: //drive. google. com/file/d/0 B 95 g. Fe 7 f 3 k 1 -b. Us 0 Z 05 DT 29 ad 3 M/view? usp=sharing www. thepalliativehub. com 10

Palliative Hub www. thepalliativehub. com 11

Palliative Care Week 2017

• Involvement in the ongoing work of AIIHPC • Engaged in National Clinical Programme for Palliative Care (Ro. I) priorities • Palliative Care in Partnership - Regional Palliative Care Programme in NI (service user involvement) • Engaged in AIIHPC partners • Voices 4 Care Research Panel

Carmel’s story https: //www. youtube. com/watch? v=1 kywso 7 Dujk&list=PLd_ma. P 4 B 2 N 3 Fcdee. FYW zfn 9 Ux. YGQSy 3 TR&index=4

Thank you www. thepalliativehub. com www. aiihpc. org Further information: bohara@aiihpc. org