A I C introducing Napoli 16 settembre 2010

A. I. C. introducing Napoli 16 settembre 2010 Prof. Cleto Corposanto AIC - Italy

1 Our first thirty years 2 Thirty years in numbers 3 Rules 4 “ 5 per mille” contribution from tax income declaration 2

1979 Which are the needs? What is this disease about? What can be eaten? Where to find products?

2010

needs • • The right “eating out” “Demedicalication” of coeliac disease “Get back” to family life The “ready to eat” gluten-free meal Gluten-free holiday Gluten-free “Sociality” Early diagnosis TODAY

On what does the coeliac person can count on? • Free foodstuff allocation (from 1982) • Safeguard rare / chronic disease • Having granted the right to gluten-free meal in public structures • More than 2. 000 products in RNA (Registro Nazionale Alimenti: Food National Register) • More than 10. 000 products in the Food and Drinks Directory, so called “Prontuario” • More than 2. 000 venues to eat and sleep out • More effective labels, the trademark • 19 local AIC societies TODAY

AIC FEDERATION National Scientific Committee General Assembly 19 local Association Chair Board of Directors “Celiachia Notizie” House Organ Editing Scientific editing Chief Operating Officer Food Catering for those whose travel Public Catering Bed & Breakfast Special Projects Foodstuff Product certification and Food and Drinks Directory Food Technology Research Food Education External Auditors’ Board Staff Treasurer Management control Aoecs representative Food Manager No Food Alimentazione Fuori Casa/ Eating out Project Restaurants, Pizzeria and Ice-cream parlours Ethic and Disciplinary Committee Trademark Fund Raising Events’ management Public Financing Projects External Relations International Relations Companies’ relations Education Medical Scientific Education Local Activites’ Development

SBS – Spiga Barrata Service limited company AIC – FUNCTIONAL RESPONSABILITY FOOD MANAGER AIC BOARD OF DIRECTORS SBS CHAIR SBS Board of Directors CHIEF OPERATING OFFICER DIET PROJECTS: • Food and Drinks Directory • Trademark • “Alimentazione Fuori Casa” Eat Out project General Secretariat Administration OTHER PROJECTS: • “Celiachia Notizie” four-monthly review • Publishing activities • Convention organization

AIC GENERAL ASSEMBLY Board of Directors VICE- CHAIR TREASURER AND SECRETARY C. S. R. RESEARCH SCIENTIFIC COMMITTEE

1 Our first thirty years 2 Thirty years in numbers 3 The Rules 4 “ 5 per mille” contribution from tax income declaration 10

Data updating Members : 56. 895 on Dec. 31° 2009, with an increase of 6% increase to year 2008

Data updating Coeliac population in Italy: more than 100 thousand people - as per advanced information from the “Relazione annuale al Parlamento sulla Celiachia – anno 2009” (annual Coeliac Parliament Relation – 2009 edition), to be shortly presented by Health Ministry-

Food and Drinks Directory, the “Prontuario” Food and Drink Directory year 2005 2006 2007 2008 2009 2010 Quantity of products 5829 6660 8612 10. 211 12. 320 * * Plus 20% compared to 2009, with a 15% increase in terms of companies

Trade Mark Updating Food and Drinks Directory year 2005 2006 2007 2008 2009 2010 Quantity of products 343 434 720 744 1014

“Registro Nazionale degli Alimenti”* (Italian Foodstuff National Register) Updating 2001: 281 products 2010: more than 2500 products and 143 companies *Introduced by Veronesi’s Decree in 2001

WHERE TO GET GLUTEN-FREE FOODSTUFF ES R O T UGS R pur etail Co cha nso sin rtiu g ms DR GLUTEN-FREE PRODUCTS SPECIALIZED SHOPS

AIC’s Projects AFC Eating Out Project 2010: more than 2000 venues

ALIMENTAZIONE FUORI CASA THE “EATING OUT PROJECT” - Precise guidelines for: • Provisioning • Storage • Production • Food supply - Educational and refresher courses - monitoring system with recurrent visits

AFC’s Venues 2010 GENRE TOTAL NUMBER “AUTOGRILL” HIGHWAY SHOPS 22 B&B 110 BAR 36 SAILING BOATS 2 “FINI GRILL” HIGHWAY SHOPS 24 ICE-CREAM PARLOUS 324 “MY CHEF” RESTAURANTS’ CHAIN 22 RESTAURANTS / HOTELS 1. 521 SUMMER CAMP 1 VENDING 10 TOTAL 2. 072

Il sito www. celiachia. it

Visitors’ number www. celiachia. it Each visitor is counted per session (in a month period)

Geografic origin (January 2009)

“In fuga dal glutine/“Running away from gluten”’s Project

“In fuga dal glutine”/”Running away from gluten”’ Project OBJECTIVES Inform and increase COMMUNITY awareness on: - what Coeliac disease is - the problems referring to this disease - therapy = the requirement to follow a strict diet - peculiarities of the diet itself Inform and Educate “SENSITIVE” people on: - coeliac disease - gluten-free nourishment To encourage - amongst STUDENTS a strong relationship foundation - within the SCHOOLS the safeguard of different needs, striving in order to reduce and avoid any discomfort arising from this diversity

Eurispes*: AIC is amongst the 100 Italian excellences On October 2° 2008, the third “Rapporto di Eccellenza” (Excellence Report) was presented: 100 successful episodes in Italy *Political, economical and social studies Institute

1 Our first thirty years 2 Thirty years in numbers 3 The Rules 4 “ 5 per mille” contribution from tax income declaration 26

CURRENT STATUS ON REGULATIONS 1982: 1992: 2001: 2003: 2005: 2008: Ministerial Decree dated July 1°, 1982 Introduction of Free Foodstuff Allocation Decree 111, dated January 27°, 1992 Particular Nourishment Decree 279, dated May 18°, 2001 Rare Diseases Decree, dated July 5°, 2001, so called Veronesi Free Allocation and Products Register Community Directive n. 89, indication of allergens in labelling Law 123, dated July 4°, 2005 Coeliac population’s prophylaxis regulation Prime Minister Decree 23/04/08 “LEA” Minimum level of service in Health provision – Rare and Chronic Disease’s listing

Law nr. 123/05 and the right for GF meal Summary: q Coeliac disease, social disease, art 1 q Confirmation of free foodstuff allocation, art 4 q Objectives: early diagnosis and prevention: medical professional trainings and refresher courses, centers and network structures’ confirmation, diagnosis’ protocols, prevention of complication and monitoring of linked diseases, test definition, art 3 Gluten free meal in schools and hospitals’ restaurants as well as in public offices, art 4 Coeliac disease information at professional training and refresher courses for restaurateurs and hotelkeepers, art 5 q Parliament report on new scientific outcome referring to early diagnosis and complication monitoring, art 6 “Legge bianca”, which is a law with no provision in case of clauses’ lack of implementation, and its application: Medical professional training Professional training for catering operators (report on art. 5) Complication Interpretation (art. 4’s emendment) 28

Law nr. 123/05, art 4 Art. 4. 1. (…. . ) 2. (…. . ) 3. Gluten free shall be given out, upon anticipated request by the interested people, in school and hospital premises, as well as in public offices’ refectories. 4. The burden outcoming from the implementation of paragraph 3 is evaluated in 3. 150. 000 euros per year as of 2005. Non official article translation 29

Law nr. 123/05, art 5 Art. 5. 1. (…) 2. Regions and self-governing districts of Trento and Bolzano to provide ad hoc coeliac disease information pamphlets at professional trainings and refresher courses for restaurateurs and hotelkeepers. 3. The burden outcoming from the implementation of paragraph 2 is evaluated in 610. 000 euros per year as of 2005. Non official article translation 30

1 I nostri primi trent’anni 2 Trent’anni in cifre 3 Le norme 4 The first communication campaign 31

AIC Coeliac disease

AIC SPOT COMPETING AT “GRANDPRIX DELLA PUBBLICITA’” 2010 EDITION

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