2018 National Cancer Patient Experience Survey Results Published

2018 National Cancer Patient Experience Survey Results Published September 2019 SWAG Skin Clinical Advisory Group Carol Chapman Lead Cancer Nurse November 2019

Background • • Annual survey since 2010 2018 Skin responses Aim to monitor national progress on cancer care and inform service improvements UHBristol 27 • Included all adult patients admitted as an inpatient or day case between April to June 2018 with a cancer related condition (C 43 melanoma) North Bristol 55 Glos / Chelt 9 Taunton 3 Yeovil 6 Weston 0 Bath 3 • • SWAG response rate 69% compared to national rate 64% SWAG Skin response rate - 126 participants

Background • Comparative performance is applied, based on calculation of “expected ranges” • Flagged as outliers if statistical evidence that score deviates from (positively or negatively) scores of Trusts/CCGs of similar same size • Site specific results were reported for Breast, Colorectal, Prostate, Haematological, Skin and Urological cancers • The results of tumour groups with less than 20 respondents were not reported • Delay of 11 months of results being published following questionnaires being sent out

Summary • SWAG rated 8. 9/10 for overall care for all cancers (national average 8. 8) and 9. 1/10 for skin (national average 9. 0) • National improvements in overall care, access to CNS support and being involved in decision making • Deterioration in scores on waiting times for first appointment , diagnostics and primary care support (UKONS) • Men rated their experience higher than women as did patients who recorded themselves as white • Patients comments are also reported but not published

Scores in skin - significantly above the national average for all cancers No 9 11 14 16 18 20 Question Patient felt they were told sensitively that they had cancer Patient given easy to understand written information about the type of cancer they had Patient given practical advice and support in dealing with side effects of treatment Patient definitely involved in decisions about care and treatment Patient found it easy to contact their CNS Hospital staff gave information about support groups Nat Av all Nat Av Skin NBT UH Bristol 99% 93% 65% 84% 89% 90% 84% 74% 81% 80% 87% 92% 91% 89% 91% 90% - 89 93 93% - 38 Given clear written information about what should / should not do post discharge 91% 97% 96% - 49 Hospital staff gave family or someone close all the information needed to help with care at home 67% 82% - 52 As far as you know, was your GP given enough information about your condition and the treatment you had at the hospital? 97% 96% 100% 71% 78% 75% 76% 73% 80% 73% 19% 54 57 Hospital and community staff always worked well together Length of time for attending clinics and appointments was right

Scores in skin below the national average and nationally low scoring questions (room for improvement) No Question Nat Av all Nat Av Skin NBT UH Bristol 8 Patient told they could bring a family member or friend when first told they had cancer 91% 66% 60% 65% 15 Patient definitely told about side effects that could affect them in the future 66% 69% - 17 Patient given the name of the CNS who would support them through their treatment 91% 87% 85% 87% 33 All staff asked patient what name they preferred to be called by 72% 64% 69% - 35 Patient was able to discuss worries or fears with staff during visit 59% 63% - - 51 Patient definitely given enough support from health or social services after treatment 59% 62% - - 53 Practice staff definitely did everything they could to support patient 67% 70% - 48% 42% 51% 16% 12% 55 58 Patient given a care plan Taking part in cancer research discussed with patient