16 th Annual Meeting of the Washington Group

16 th Annual Meeting of the Washington Group on Disability Statistics Accomplishments, Objectives and Agenda Jennifer Madans (U. S. A. ) National Center for Health Statistics/ Washington Group on Disability Statistics 6/6/2021 WG-16 Pretoria, South Africa 1

WG – laying the foundation: 1. Agreement to develop short and extended sets of internationally comparable disability measures for censuses and surveys 2. Using the ICF as a framework 3. Equalization of opportunities selected as purpose of measurement 4. Developed a comparable testing methodology 6/6/2021 WG-16 Pretoria, South Africa 2

WG Tools: 1. WG Short set adopted 2006 2. WG Extended set on functioning for adults adopted 2010 3. WG/UNICEF Module on Child Functioning – adopted by UNICEF, to be considered by WG at WG-16 4. WG/UNICEF Module on Inclusive Education – cognitive testing commenced 5. Module for use in Labor Force Surveys (with ILO) – cognitive testing commenced 6. Module on Mental Health under development 7. Additional extended set on the environment and participation currently under development 6/6/2021 WG-16 Pretoria, South Africa 3

Summary of annual meetings 1. Washington, DC 2. 3. 4. 5. 6. 7. 8. 2/2002 Canada 1/2003 Belgium 2/2004 Thailand 9/2004 Brazil 9/2005 Uganda 10/2006 Ireland 9/2007 Philippines 10/2008 6/6/2021 9. Tanzania 10. Luxembourg 11. Bermuda 12. Thailand 13. Jordan 14. Argentina 10/2014 15. Denmark WG-16 Pretoria, South Africa 10/2009 11/2010 11/2011 10/2012 10/2013 10/2015 4

WG-15 in Copenhagen Oct, 2015: The meeting was attended by 72 persons: • • • 32 representing national statistical authorities from 23 countries; 15 representatives from universities or national institutes of public health or other national research bodies or ministries; 4 representatives from the National Center for Health Statistics (WG Secretariat); 13 representatives from organizations representing persons with disabilities; and 8 representatives from international organizations (DFAT, DFID, Eurostat, ILO, JICA, UN DESA/UN Secretariat of the CRPD, WHO-FIC Collaborating Center - Netherlands) 6/6/2021 WG-16 Pretoria, South Africa 5

WG-15 Key Sessions: • • Proposed guidelines for analyzing data obtained from the WG extended set on functioning Methodological issues concerning surveys: Child disability: WG/UNICEF modules on child functioning & inclusive education – status reports Methodological issues concerning surveys: mental health, disability module for labor force surveys, environmental factors & participation Review recent international activities in disability statistics including the use of outcome indicators for monitoring the UN CRPD and SDGs 6/6/2021 WG-16 Pretoria, South Africa 6

Workshops and Expert Consultations: Nairobi, Kenya 06/2005 Mumbai, India* 09/2012 Bishkek, Kyrgyz Republic 12/2006 Belmonpan, Belize* 01/2013 Sarajevo, Bosnia & Herzegovina 02/2008 Amman, Jordan 05/2013 Bangkok, Thailand 04/2008 Podgorica, Montenegro* 07/2013 Ohrid, Macedonia 11/2008 Apia, Samoa* 06/2014 Dhaka, Bangladesh 08/2009 Hammamet, Tunisia* 02/2015 Muscat, Oman 10/2010 04/2013 Geneva, Switzerland* 07/2015 Damascus, Syria 12/2010 NY, New York* 06/2016 Sharjah, UAE 05/2011 Nadi, Fiji 07/2016 Bogotá, Colombia 07/2012 08/2013 Westchester, NY* 10/2016 6/6/2021 WG-16 Pretoria, South Africa *in collaboration with UNICEF 7

WG: Workgroups / Leaders • • • Workgroup on the Analysis of the Extended Set on Functioning / NCHS Workgroup on Child Functioning / NCHS Workgroup on Environmental Factors and Participation / NCHS Workgroup on Mental Health / Margie Schneider, South Africa; Elena De Palma, Italy Workgroup on Disability Module for Labor Force Surveys / Daniel Mont, UCL 6/6/2021 8

Report Series of WG activities: • • WG Short Set: Disability Information from Censuses, prepared for DPOs WG Short Set: Development of an Internationally Comparable Disability Measure for Censuses, prepared for NSOs Monitoring the UN CRPD Understanding and Interpreting Disability as Measured using the WG Short Set of Questions The Measurement of Disability: Recommendations for the 2020 Round of Censuses Development of Extended Sets of Disability Measures for Surveys Disaggregation of SDG Indicators by Disability Status A way forward 6/6/2021 WG-16 Pretoria, South Africa 9

The New WG Website: http: //www. washingtongroup-disability. com/ 6/6/2021 WG-16 Pretoria, South Africa 10

Volume on the history and accomplishments of the WG: International Measurement of Disability: Purpose, Method and Application The Work of the Washington Group B. M. Altman (Editor) Springer (Publisher) Publication: June, 2016 6/6/2021 11

Collaborations: The WG has a long history of collaboration with other international organizations: • UNSD (Statistical Division) • UN DESA (Department of Economic and Social Affairs) • UNICEF (Children’s Fund) • ILO (International Labor Organization) • UN ESCAP / UN ESCWA (Economic and Social Commission for Asia and the Pacific/Western Asia) • World Bank • World Health Organization • US AID as well as many National Statistical Offices and both Non. Governmental and Disabled Person’s Organizations 6/6/2021 WG-16 Pretoria, South Africa 12

Some specific outside activities: Cognitive testing: • • UNICEF: Module on Inclusive Education ILO: Disability module in labor force surveys One-UN (UN partnership with ILO, WHO, UNICEF, UNFPA): • to develop a common narrative covering approaches to measuring disability for monitoring, cross-national comparability, and policy development UNICEF: • 6/6/2021 deployment of the Module on Child Functioning in the Multiple Indicator Cluster Surveys (MICS) WG-16 Pretoria, South Africa 13

Some specific outside activities: • • • Handicap International: initiatives in the Andean region, east Africa, in emergency response situations; and training (development of elearning modules) US AID: development of a disability module to include the WG Short Set in the Demographic and Health Surveys (DHS) Global Action on Disability (GLAD) Network: to provide support and coordination in enhancing the inclusion of persons with disabilities in international development and humanitarian action. 6/6/2021 WG-16 Pretoria, South Africa 14

Endorsement of WG SS in International Initiatives Recommendations for monitoring: • • UN DESA/UNESCO Expert Group Meeting, Paris, July ‘ 14 Follow-up conference on disability data, London, Oct ‘ 14 Adoption in International aid programs: • • • UK Department for International Development (DFID) Australian Department of Foreign Affairs and Trade (DFAT) US Agency for International Development (USAID) The 2020 round of censuses: • • UN Department of Economic and Social Affairs (DESA) UN Economic Commission for Europe (ECE) 6/6/2021 WG-16 Pretoria, South Africa 15

Disability Data Disaggregation: Joint Statement by the Disability Sector “…to ensure international comparability and comparability over time for the purposes of SDG data disaggregation for adults, we recommend the use of the Washington Group short set of questions. For disaggregation by disability among children the recommended tool is the UNICEF/Washington Group module on Child Functioning. Both instruments can be easily and cost effectively inserted in all national data collection efforts. ” 6/6/2021 WG-16 Pretoria, South Africa 16

Use of the WG Short Set in censuses, national surveys, disability modules or pre-tests (n=78) Afghanistan Argentina Armenia Aruba Bangladesh Bermuda Bosnia & Herzegovina Botswana Brazil Burundi Cambodia Canada Chad Croatia China (Hong Kong SAR) Dominican Republic D. R. Congo Egypt Estonia Fiji France India Iran Ireland Israel Italy Ivory Coast Jamaica Japan Jordan Kazakhstan Kenya Kosovo Latvia Lesotho Malawi Malta Mexico Moldova Mongolia Montenegro Montserrat Mozambique Namibia Nepal Netherlands Antilles Oman Pakistan Palestine Panama Paraguay Peru Philippines Poland Qatar Romania Rwanda Samoa St. Maarten Serbia Sierra Leone South Africa Sri Lanka Sudan Swaziland Tanzania Taiwan Thailand Tunisia Turkey Uganda United Arab Emirates United States Vietnam Yemen Zambia 17

The Road Ahead • We will continue to work on question development for sub-populations (children), and specific areas (mental health, environment & participation) • We will discuss: • • • 6/6/2021 Capacity building, Training & Technical assistance, Analysis, Implementation, and Dissemination. WG-16 Pretoria, South Africa 18

Main Objectives for 16 th meeting • • • Provide an up-date on the WG Extended Set of questions and approve analytic guidelines; Present work on the analysis of field test data from the WG/UNICEF module on child functioning and approve the module; Up-date on the development of a disability modules on inclusive education and labor force surveys; Methodological issues concerning environmental factors and participation; Status on development of questions to measure mental health; Country activities and Review recent international activities in disability statistics 6/6/2021 WG-16 Pretoria, South Africa 19

Agenda: Sessions Overview 1. Opening 2. WG Extended Set on Functioning – proposed guidelines for analysis: for approval 3. Measuring Child Functioning: background, results of field testing and presentation of final module: for approval 4. WG tools for disaggregation by disability status 5. Measuring environmental factor and participation: WG/UNICEF Module on Inclusive Education & WG/ILO Module for LFS 6/6/2021 WG-16 Pretoria, South Africa 20

Agenda: Sessions Overview 6. Development of measures specific to Mental Health 7. Disability Measurement in Africa 8. Country activities 9. WG Collaborations and other related activities 10. Next steps and Objectives for the 17 th meeting Post-meeting sessions 11. Planning meetings for Workgroups (if desired) 6/6/2021 WG-16 Pretoria, South Africa 21

So, Let’s begin… 6/6/2021 WG-16 Pretoria, South Africa 22